a wooden boardwalk goes straight through a marsh. Overgrown tall grass and reeds grow slightly over the sides of the boardwalk as it disappears into the forest.

Grief and Disability: Carrie’s Story

It has become clear to me over time that we have much work to do to ensure the delivery of disability-sensitive grief literacy and grief support. In March of 2022 my proposal for four 1-hour sessions was approved, we provided the program for 20 participants. My heart was full in each session.

My heart remains full of hope that conversations, education, and expertise about disability sensitive end of life care and grief support will gain momentum as more and more people join in on this vital conversation.

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a collage of characters, drawn by a child.

Doodles

On the first anniversary, I invited people who would understand – friends who knew Marshal’s love of art, and his creative spirit. They all came.

I had copied several of Marshal’s doodles of incomplete characters and creatures, with some finished for the kids to color. I eagerly watched to see which doodle or drawing each person chose.

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What Can Help with Early Traumatic Grief?

When your child dies you are thrown into a nightmare. None of this is expected to be easy.
Even after several months, it still isn’t. There have been some things that have helped us during
our grief. Maybe they will help you, too.

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The Meaning of Tisha B’Av

Starting on sundown, July 26th , some Jews will begin to fast. Unlike the more well-known Yom Kippur,
which is for atonement, Tisha B’Av is a specific holiday for mourning and grief. Its exact date varies with the ancient Jewish lunar Calendar, but is sometime in July or early August. All Jewish commemorations
begin in the evening due to this lunar calendar.

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a bridge in the fog

Grief Literacy and Developmental Disability

Grief literacy has become a popular topic, yet it is a topic that is untapped within the disability community, specifically within the developmental sector. The sector supports and empowers people with a developmental disability and consists of families, their loved ones and service providers.

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an orange sunset over a lake. There is lad in the distance and a small piece of land poking out on the right side of the photo.

Grief and Parenting in the Disability Community

In this blog post, Carrie writes about being the parent and primary caregiver to a child with disabilities and grieving the loss of a child dying from their disabilities.

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a rocky beach with a small, green sprout popping through the rocks. You can see the gentle waves of the lake in the background of the image.

When Death Feels like a Thief

In the heart of my grief, at my frailest, all I could see was what was no more. I grieved all that was stolen from me by death; love, security and even my very self. Had I known the value of having every pocket of who I was, picked bare by grief, I would not have fought so hard to hold onto it all.

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