When Death Feels like a Thief

The Reflection Room® project: How storytelling supports processing grief

March 17, 2023

The Reflection Room project is an evidence-based participatory art installation that was developed by researchers at the SE Research Centre and Memorial University in 2016. The project included a research component that evaluated the impact of Reflection Rooms as the project adapted over time to address changing needs.

Beauty found at the edges: a portrait of community support

March 1, 2023

I’d sent a text saying “Hello friends, I’m putting out a call for flowers. I went to public school with Kory, the young man who died in downtown Cobourg this week, and though I hadn’t seen him in recent years, I feel the loss of him on a community level, as I imagine you do, too. Some of Kory’s people are gathering tonight in vigil at the bank where he died, and I’m gathering flowers from those of us who have gardens to share with this grieving community. Do you have some blooms in your garden that you’d be willing to share?”

Alongside

February 8, 2023

That is also our best, and only role, when supporting a person with a developmental disability to grieve. We must be the one that comes alongside. There is no closer place we can get to. We must be present, be with, perhaps not understanding or comprehending what the person we support is experiencing, but alongside them nonetheless. We must be there, ready to provide whatever we can discover of their unique need in grief.

Grief & Ice Cream

January 25, 2023

When my wife of 18 years died in 2016, I became a single father missing the love of my life, and also had to learn how to raise two girls (13-17 at the time) on my own. I remember a conversation I had with my mother-in-law and oldest daughter that began as reminiscing over a person who became a lost love to all of us. We all talked about different aspects of my wife but shortly, it transformed into a “who meant more to her” fest.

Tips for Grieving During the Holidays

December 23, 2022

The holidays can bring up a lot of feelings, especially when you’re grieving the loss of a loved one. Whether it’s the first holiday season without someone, the holidays mark a time where someone you love died, or it’s just hard to be around celebration when you’re not feeling celebratory, December can feel heavy.

These are a few tips for grieving during the holidays.

Learning from Grief

December 7, 2022

Grief is weird. Odd start, I know, but that was the sentence I used a lot whenever someone asked me how I was. It was never a constant feeling; it changed day to day. And still does. It’s the full gambit of emotions from sadness to anger to guilt and, though dark, even humour found its way in.

There One Day and Gone the Next : Art Therapy and Grief

December 2, 2022

This blog post contains information about using art therapy to process grief, including specific examples.

Grief Literacy and Developmental Disability

November 6, 2022

Grief literacy has become a popular topic, yet it is a topic that is untapped within the disability community, specifically within the developmental sector. The sector supports and empowers people with a developmental disability and consists of families, their loved ones and service providers.

Grief and Parenting in the Disability Community

October 5, 2022

In this blog post, Carrie writes about being the parent and primary caregiver to a child with disabilities and grieving the loss of a child dying from their disabilities.

Grief and Disability: Carrie’s Story

September 20, 2022

It has become clear to me over time that we have much work to do to ensure the delivery of disability-sensitive grief literacy and grief support. In March of 2022 my proposal for four 1-hour sessions was approved, we provided the program for 20 participants. My heart was full in each session.

My heart remains full of hope that conversations, education, and expertise about disability sensitive end of life care and grief support will gain momentum as more and more people join in on this vital conversation.

Birthdays, Anniversaries, and Other Special Days

September 15, 2022

When we are grieving, some days are more difficult than others. Grief comes in waves like the sea and can feel like an intertwining labyrinth of emotions. Birthdays, anniversaries, and special dates that are associated with our loved one who has died can contribute to more emotionally intense days which can be worsened through the anticipation and “what ifs” of the upcoming day. These difficult days can leave us feeling defeated and it can almost feel like we’ve taken two steps backward in our grieving process, but grief does not have a timeline, and these feelings of setbacks are opportunities for healing.