Posts Tagged ‘grieving’
Grief and Parenting in the Disability Community
By Carrie Batt, Grief Educator
Parenting is complicated as it has so many twists and turns. There are a variety of parenting styles such as hovering, free and easy, and everything in between. The one thing parents have in common is the fact that parenting never ends, thought it changes. Many parents can look forward to their child changing as they age and gain independence. Parents often look forward to and are proud of their child leaving the nest. Yet for many parents with children who have developmental disabilities, that is not the case. These parents must offer unwavering support, care, and guidance to their child or children who live with disabilities.
These are parents who are relied on in various ways, being the primary caregiver and managing everything. Some parents aging into their 70s, 80s, and 90s remain the sole primary caregiver to their child. Their day-to-day parenting tasks have never ended as their child has grown into adulthood. In fact, for some, their parenting roles increase as their child ages and may begin to lose daily living skills, develop early-stage dementia, show signs of aging or illness, begin to regress in specific areas or require much more support. Some parents must also cope with the fact that their child may be experiencing mental health issues in combination with a developmental disability. This is a most unique parenting experience as it is all-consuming. Such parenting speaks to a level of commitment and unconditional love where unwavering support is a constant.
In conjunction with these realities, there are times when such parents become a part of the end-of-life and palliative care communities. Once their child with a disability is diagnosed with a life-limiting illness, the only choice is to navigate end-of-life care, and there is no road map for what these parents will be embarking on. When it comes to death, dying and disability there is no education or expertise readily available. The same is true for grief, loss, and disability. Currently there are few disability-sensitive supports for such families who are having to transition from being the primary care giver to preparing for the impending death of their child.
The grief surrounding these realities have yet to be spoken of or integrated into the bereavement services and are rarely acknowledged within the developmental sector. The same is true of the reality faced when a child with a disability must face to mortality of their parents and primary caregivers, as for many of these children they may never have left the family home.
This is a type of grief most cannot imagine. This type of grief has not yet been recognized, validated, and honoured. There has been no space made within our grief support services that speaks of the magnitude of the grief surrounding these families. My hope is that the light can shine to meet these needs in the developmental sector for the families we serve.
Birthdays, Anniversaries, and Other Special Days
Rachel Herrington – Social Service Worker Graduate, Third Year Psychology Student, Equal Rights and Community Advocate
It has been 10 years since my grandmother passed away and it never fails, every year leading up to her birthday I spend weeks with a pit of sadness and remorse in my stomach. I spend my days feeling this way and not understanding why then something makes the date catch my eye and it hits – It’s her birthday.
When we are grieving, some days are more difficult than others. Grief comes in waves like the sea and can feel like an intertwining labyrinth of emotions. Birthdays, anniversaries, and special dates that are associated with our loved one who has died can contribute to more emotionally intense days which can be worsened through the anticipation and “what ifs” of the upcoming day. These difficult days can leave us feeling defeated and it can almost feel like we’ve taken two steps backward in our grieving process, but grief does not have a timeline, and these feelings of setbacks are opportunities for healing.
Before the Day:
Communicate and set boundaries with others – think about how you want to approach the day and share your wants, needs, and desires with others. Clearly communicating your wants and needs with others will allow the opportunity for you to set the expectation for the day which can help relieve the intense feelings of anticipation.
Remember there is no right or wrong way to celebrate special days – It is important to remember that there is no right or wrong way to grieve and there is no written code or rule on how these special days are to be approached. However you decide to approach the day is the right way.
On the Day:
Allow yourself the opportunity for space from others – it is important to allow there to be an opportunity for you to step away and have a safe space to feel your emotions if you need to. If you are attending someone else’s home for the occasion plan a way that you can step away or leave with ease if you need to.
Find something that grounds you when intense emotions arise – if intense emotions are arising it can be helpful to find something to help ground you in the moment. This could be a physical item such as a small trinket in your pocket that you can hold, squeeze, and focus on in your hand, or it can be through positive mental imagery, deep breathing, and/or stress relieving acupressure, etc.
Take deep breaths – practicing deep breathing can help reduce stress and can increase resiliency during highly emotional or stressful situations.
If things don’t go as planned, that is okay – grief is a process with no timelines or set of rules, and sometimes things do not always go the way we plan and that is okay. Allow yourself time, patience, and understanding while you adapt to living with your unique grief experience.
Weathering the Intense Emotions of Grief
Post by Maureen Pollard, MSW, RSW
Grief often comes with powerful, unpredictable emotional shifts that can be painful to experience. While it’s important to find ways to sit with these feelings, to acknowledge the pain of grief and accept loss, it’s also necessary to find ways to ease and manage the pain. There are several simple activities that you can explore to help.
Ground Yourself in the Present
Use your senses to remind you that you are safe, here and now. When we are feeling intense emotions we are often caught reliving a moment in the past, or we are fretting over some anticipated event in the future. We can’t undo the past and we can’t control the future, which only intensifies these difficult feelings. When you use your senses, it pauses your racing thoughts and can help calm the turbulent feelings.
Notice the things in your environment you can see. Count the number of items that begin with the letter A, then the letter B, or count the number of green things.
Notice what you feel around your body. Sense the ground under your feet, the chair under your bottom, the clothes against your skin, the sun on your cheeks, or the breeze in your hair.
Notice what you hear. Voices. Background noises of the building such as the furnace or a fan or the hum of fluorescent lights. Music. Nature sounds.
Notice what you smell. Is the air stale or fresh? Is there some overpowering smell, or not much smell at all?
Notice if you have a taste in your mouth. Is it the sweetness or savoury taste of something you just ate, the minty freshness of toothpaste or gum, or perhaps the sour taste of morning breath.
Breathe.
A deep slow breath can activate the calming centre of our nervous system. When you breathe deeply and exhale slowly, you set off a cascade of calming chemicals in your brain that help ease tension and stress.
Try 4-7-8 breathing. Inhale as you count to four. Hold your breath for a count of seven. Exhale as you count to eight. Repeating this breath three times takes less than one minute, and when you practice it often you develop a muscle memory that helps you access this deep, slow breath during times of strife.
Indulge in Self Care
Enjoy a cup of your favourite herbal tea or soup. Take a hot bath, perhaps adding Epsom salts. Or a shower with your favourite body wash. The warmth and scent of these activities will work together to activate the same calming centre in your nervous system that is affected by deep, slow breathing.
Plan Intentional Change
Sometimes our routines cue us to experience distressing memories and disturbing thoughts and feelings. When this is the case, it can help to examine your schedule and activities. What seems to upset you? Is there a way to pause the activity or shift it to another time of day to try to break the connection with the difficult experience?
It’s true that we can’t help our thoughts and feelings. It’s also true that we can develop responses to the experience of intense grief that help us feel more in control as we heal.
What Does Grief Support Look Like?
Post by Maureen Pollard, MSW, RSW
When we experience significant, on-going symptoms of grief that interfere with our adjustment to the reality of our loss, it can be time to seek professional help. It can be difficult to know where to find help and what grief support options are available.
Begin by asking for a referral. Maybe your family or friends have received good grief support they would recommend. Your doctor can typically provide a referral or you can conduct an internet search. When you find a grief support program on the internet, take time to examine the website thoroughly then connect by email or telephone to ask any questions you have before deciding which support might be the best fit for you.
Types of Grief Support:
Individual counselling with a therapist. A professional who has experience and knowledge in the area of dying, death and grief will listen to your story without judgment and then co-create a plan for healing that feels comfortable for you. The time you spend in counselling should be dedicated to your grief, with a focus on helping you find your way through your experience using information, insights and skill of the therapist to help you through the complex feelings and tasks.
Group therapy. This type of support may be led by a professional, or may be offered by peers who have experienced a similar loss. Groups can offer a rich support experience that lets you know you are not alone, and offers you the opportunity to learn from several others living with a similar loss. The time you spend in group will be shared and with a focus on topics relevant to the group’s purpose rather than any one group member’s situation. It’s important to learn about how the group works and what types of activities you’ll experience as you decide whether to try attending a group. If the group is run by peers, ask what type of training and support they received to ensure they’re delivering quality care.
On-line forums. There are many groups and forums focused on grief education and support on the internet. These are easy to access and allow you to participate at your own comfort level, either by simply reading posts or actively sharing your own situation, seeking support and offering support to others. A forum can create a sense of community among its membership, providing a great source of information and support from others who have a similar experience of loss who share what they have learned. In public internet forums there is always a risk of interference by people who post to cause trouble, but private, members-only, moderated forums can significantly reduce this risk.
Remember, whatever type of grief support you try beyond family and friends, don’t be afraid to quit if the style or structure of the support doesn’t feel comfortable or helpful. If you’re still experiencing the symptoms that led to your decision to seek additional help, please don’t stop trying to find the kind of support that can meet your needs. There are many different types of counsellors, groups and forums and it can take some time to find the one that’s right for you. Your healing is worth it!
Tending to My Garden of Grief
By Taylor Bourassa, RP & Professional Art Therapist.
Losing a loved one –whether through death or the end of a relationship, brings up complex emotions, some of which are hard to process. The first major loss I can remember experiencing was when I was quite young and my grandfather died. I barely knew the man, but to this day we still share stories of his impact on my father, his son, my mother, his daughter-in-law, and us, his grandchildren. The memories bubble up slowly and play in my mind like a distorted movie playing on the television screen. It is part of my life I can’t quite recollect without the input of others. Then in my middle teen years I attended a funeral for my grandmother’s sister, and I remember watching the grief flood my grandmother’s face as she dissolved into tears and I wondered: how can I, or any one else hold this grief in the “right” way? How can any of us help ease that pain?
When I was 16 or 17, my cat, who I still recognize as my earliest best friend, developed cancer and needed to be put down. This was the hardest thing I had had to face at that point in my young life. I was faced with what seemed to be inconsolable grief. That same thought bubbled up: how can anyone ease this unbearable pain?
A few years ago I was faced again with the reality of our mortality on this planet Earth when my dog, Roxy, had to be put down due to ailing health and decline. That same question flitted through my mind. Now, at 29, and having faced multiple losses and deaths I finally have some semblance of an answer to that question. It isn’t straightforward, and it probably isn’t universal. But it feels appropriate for me: remember, honour and celebrate. The pain of these losses will more than likely be with me my entire life, until the day I die and pass the pain onto my loved ones left behind. So long as I remember the lives of those I have lost, honour their presence and impact on me and celebrate their spirit, they will continue to live with me and the pain will feel bearable. It will no longer stop me in my tracks. Instead, it will encourage me and propel me forward through the transmutation of that grief into something different, something more nuanced and fluid. I’d like to share a practice for processing grief which I have found to be especially helpful.
Reflect on person or pet that has passed on and write a letter to them. Use recycled, bio-degradable paper to write this letter, so that when you get to the end of this invitation and you plant your letter it will be taken back into the earth and soil.
Imagine the things you appreciate about this person, the memories you two share, the impact they have had on you, and anything you feel has been left unsaid or unexpressed while they were still living. Before you close and seal the letter, read it back to yourself and sit with whatever memories, feelings and thoughts come up. Allow the energy of this person to show up and sit with that felt sense of who they were. When you are ready, fill the envelope with your letter and the seeds of your choice: flowers, fruits or vegetables. Use the seeds which you feel best honours the person. Find a location that is both accessible to you and reflects a space of honouring and celebration. This may be a favourite shared space between the two of you, or a new spot you would like to crop out as a way to honour and remember them. Once you have found your spot, take your letter and your seeds and bury them in this spot. Eventually, the seeds you have planted will sprout and grow, changing the spot into a new gravesite garden. Soon, the biodegradable letter will also be gone, subsumed back into the womb of the earth and soil, feeding the land for the growth and propagation of the flowers you have planted. Maybe these flowers will remain only in the space you created, or, what is more likely, they will be spread on the wind and the legs of bees, and the beaks of birds until the grass beneath is forever changed, peppered with new and continuing growth.
What a beautiful way to honour the deceased: recognizing their continued impact on you and the world around you as they and their memory connects with and returns to the earth. I find this to be a helpful way to process my own grief because it allows me an embodied, tangible and somatic way of addressing, honouring and processing the grief held inside my body. The grief will always be there in some capacity, and now there is a space which I can visit and reflect. The heaviness and weight of the grief is no longer mine alone – the whole earth helps me to carry it. Grief is such a unique, yet universal experience. My own experiencing of grief is all I know for certain, and so I keep searching for answers. I hope that as you navigate your own grief, you can alleviate some of the weight by sharing the load with the natural world around you.
Donna B – “When the death is public”
Donna B – “When the death is public”
Donna discusses healing and a public death. Donna continues to grieve the death her son during service in Afghanistan.
Donna B – “Sharing Stories”
Donna B – “Sharing Stories”
Donna shares a story and explains why it feels so good. Donna continues to grieve the death her son during service in Afghanistan.