Bereavement Professionals’ Insights

Grief and Disability: Carrie’s Story

It has become clear to me over time that we have much work to do to ensure the delivery of disability-sensitive grief literacy and grief support. In March of 2022 my proposal for four 1-hour sessions was approved, we provided the program for 20 participants. My heart was full in each session.

My heart remains full of hope that conversations, education, and expertise about disability sensitive end of life care and grief support will gain momentum as more and more people join in on this vital conversation.

Claudia – Art in community versus art therapy

Claudia explains how art therapists are trained and how what they do is different that doing art in community

Claudia – Waterlillies

Claudia talks about how she painted on panels big enough to hug to help her with her grief

Janice – “Grief can be complicated”

Janice discusses disenfranchised grief and holding on to hurt.

Carrie – Validation

Carrie talks about validation and feeling that someone is full responsive and fully present to you and what is going on in your grief… feeling “felt”

Weathering the Intense Emotions of Grief

Grief often comes with powerful, unpredictable emotional shifts that can be painful to experience. While it’s important to find ways to sit with these feelings, to acknowledge the pain of grief and accept loss, it’s also necessary to find ways to ease and manage the pain. There are several simple activities that you can explore to help.

Rev. Sky – “Emotions”

Rev. Sky talks about the emotions that come along with loss and outlets that can help.

Carrie – Thanatology

Carrie explains how thanatolgy is the study of death dying grief and loss.

Rev. Sky – “Feeling numb”

Rev. Sky discusses how feeling numb is a normal emotion and what you need to move forward.

Jacqueline – Humour

Jacqueline talks about how huour has a place in grieving

Janice – “Risks”

Janice talks about risks in behaviour and progress.

Cara – Grief and intellectual disabilities is a topic that needs to “get out there”

Cara shares some information from a participant in her research on intellectual disabilities and the bereaved. A person with an intellectual disability said… “Grief: It’s a topic that needs to get out there” Grief is something that so many people are hesitant to talk about, to display, to show, because there’s so many social rules around how we grieve. This is particularily challenging for the intellectually disabled.