Image of a female mallard duck on a body of water with ducklings around her.

Left Out: Enfranchising Children’s Grief and Loss

By: Jessica Milette, MSW, RSW


All human beings have the capacity to grieve: people with intellectual disabilities, those living with a traumatic brain injury, and children of all ages. However, many people can experience disenfranchised grief when someone dies. Disenfranchised grief is generally grief that is not usually openly acknowledged, socially accepted or publicly mourned. Society disenfranchises grief and mourners by not recognizing one or more of the following: the relationship between the deceased and a survivor, the importance/impact of the loss, or the need to be a griever. Despite the fact that 1 in 14 children will experience the death of a parent or sibling in Canada, children are often left out of conversations about death, dying and grief further disenfranchising them.

In this post, we’ll break down some common myths about children’s grief, how they can disenfranchise children who are grieving, and some gentle strategies caring adults can use with grieving children.

Myth: Children do not have the capacity to grieve

 

Reality: Children do grieve, it just looks different

We grieve because we have a connection to the person who died. In infancy, babies make attachment connections with their caregivers. When children experience a death, or a change in this connection they will grieve. Based on a child’s developmental age and stage, how they express their grief will vary.

Tips:

  • Remember, children can express their grief in more physical ways such as experiencing some regression in milestones, like a child who has slept in their own room for some time may need to cosleep with their parent after a death.

  • Get creative with your child: they may not be able to clearly communicate in words but consider how they can play or create art to help them understand their grief and associated feelings?

 

Myth: Children should be excluded from memorials, funerals, and/or rituals to honour the deceased because it may be “too upsetting” or they will not “understand”

 

Reality: Children’s understanding of grief is different than adults. They should be given invitations to engage in rituals to honour the person who died

Children’s understanding about death and dying is more concrete, and becomes more nuanced and abstract as they age. Just like when supporting grieving adults, clear communication and honouring autonomy is important with children. Excluding children from the opportunity to participate in activities that honour the loved one’s memory can further disenfranchise children.

Tips:

  • Talk with your child in age appropriate ways about what to expect and what happens at the memorial ritual ahead of time.

  • Ask them in the days leading up, and on the day of the event if they wish to attend. Build a plan for your child to spend time with supportive loved ones if they wish to not attend the large gathering.

  • Be prepared with things that help your child feel supported, and provide opportunities for breaks to move and play outside during the day if they are becoming overwhelmed.

  • Honouring and remembering a loved one doesn’t stop at the funeral, create ways for you and your child to honour the person who died in ways that feel good to them.

 

Myth: Grief is a linear process that follows a timeline

 

Reality: Grief shifts and changes across a person’s lifetime, from childhood to adulthood.

As children move through different developmental ages and stages their understanding of grief evolves . All humans, including children can also experience regrief when they meet a milestone after their loved one has died.

For example, a child who had a parent die when they were 9, may experience intense grief reactions as they prepare to graduate from school, learn to drive a car, or have their own children.

Society also attempts to regulate how, when, and how long people may grieve. Suffocated Grief, a term coined by grief expert Tashel Bordere speaks about how a griever can feel punished for their natural expressions of grief. Children can be disenfranchised by teachers, being punished for physical reactions of their grief by being called “disruptive” and being sent to the office for discipline.

Tips:

  • When a child in your life is displaying atypical behavioural patterns, think about – could this be grief from earlier in their life showing up?

  • Continuing to share stories about the person who died with grieving children across their lifespan, creating space to ritualize them, and validating their emotions is important.

 

Myth: Children should be spared from seeing adults in their lives expressing their painful grief emotions

 

Reality: It’s important that children see others in their life grieving, and be validated that it’s okay to feel sad, mad, or any other emotion they are experiencing

Grieving adults are also facing deep pain, and we are often taught by society to keep it behind closed doors. Letting children in our life see us feeling sad, and coping with our grief in healthy ways role models to children that it is natural to feel and express grief with people who are caring.

Tips:

  • It’s okay to let a grieving child see a grieving adult feel sad or mad. You can let the child know that grief is natural and we can have different emotions because we miss the person who died.

  • Caregivers need care too. Consider exploring finding your own sources of support in addition to creating opportunities to share with your child about grief, such as using your own support network, exploring therapy, or joining a caregiver and child grief support group.


About Jessica Milette, MSW, RSW:

Jessica Milette is a passionate community-focused grief advocate, fostering change through a culture of collaboration, lifelong learning, best practices, and creativity to build a brighter and kinder future.

Jessica joined the Grief Stories Operations team in 2023, bringing over 15 years of experience providing grief and mental health peer support, in addition to being a registered social worker, practicing since 2018.

Jessica believes in the power of connection; within ourselves, with those who have died, those we are in relationship with, and with our greater communities. Through sharing our stories of grief and loss, we tend to our connection with those who have died and create meaningful connections with others.

Jessica is a white neurodivergent woman living on the traditional territory of the Anishnabek, the Haudenosaunee, the Attiwonderonk, and the Mississaugas of the Credit peoples, also known as Guelph, ON.

a bridge in the fog

Grief Literacy and Developmental Disability

By Carrie Batt, Grief Educator

Grief literacy has become a popular topic, yet it is a topic that is untapped within the disability community, specifically within the developmental sector. The sector supports and empowers people with a developmental disability and consists of families, their loved ones and service providers.

Within the sector there are very few conversations, education, or shared expertise about grief, loss, and disability. The pandemic brought to light the sheer lack of education and support that exists about grief, loss, and disability. My way of dealing with such a realization was to try to make a small change, which began by forwarding a proposal to my employer, requesting that we offer grief literacy sessions. The proposal was accepted, and we successfully offered four 1-hour grief literacy sessions, which reached a total of 20 participants. What we learned in offering these sessions was the value of learning new language to help in expressing and describing their grief experiences as, often, people with a developmental disability have grief stories that so often are unacknowledged and go unnoticed. Their grief histories are often extensive, and very painful. The painful history of the grief experienced amongst people with a developmental disability that begins with the atrocities of the institutions, the Huronia Regional Centre, The Ontario Hospital School, and The Orillia Asylum. The magnitude of such grief and loss has only recently been made public.

There is such an enormous amount of grief and the loss that until recently was unnoticed. Such unacknowledged grief within the developmental sector is far more common than ever imagined, especially when we include that of our direct support workers. Currently their grief is unheard of. Consider for a moment, supporting someone for ten years in their home, and when the supported person dies, cleaning out their room to prepare it for the next person to move in, and doing so without any recognition of your personal grief. Such scenarios play out daily within our developmental sector and just being expected to carry on with the work is the norm.

With that said, the reality remains that the developmental services sector can only benefit from receiving support and guidance from the bereavement support services sector. Such a partnership would help to bridge the gaps and begin dedicating resources towards, training education, and understanding about grief, loss and disability.

Cara – The real issues for grieving people with intellectual disabilities

Cara – The real issues for grieving people with intellectual disabilities

Cara provides some context for the real issue of grief in the lives of people with intellectual disabilities and those supporting them, including that we consider that there’s not a lot of education or information out there about how best to support someone with an intellectual disability who is grieving.