a birch tree covered in moss on an autumn forest ground with water in the background

Jessica’s Reflections as an Adult Grieving Child

By Jessica Milette, MSW, RSW

November is considered Bereavement Awareness Month, and this year November 16 commemorates Children’s Grief Awareness Day. 1 in 14 children in Canada will experience the death of a parent or sibling by age 18.

The first funeral I attended was at the age of 7 when my Nana, or paternal grandmother died. My family buried my maternal grandfather 7 years later after he experienced a stroke when I was 14 and my mother was still in treatment for cancer. 13 months later, I would be burying my mom at age 15 after dying of cancer. She was 49. We would be gathering again less than two months later to bury my godmother and aunt who died suddenly and unexpectedly. Every time I felt like I had found footing on the shores of my grief, another loss would crash over me like a wave, dragging me out to a sea of unknown.

Navigating puberty can be an exciting and challenging transition in our life that also can have us feeling grief from non-death losses as we figure out who we are becoming. Not only was I trying to make sense of hormones and changes during this time of life, but my mom – the person who I would have gone to for support was no longer a phone call or hug away. Parents or trusted adults are people children often turn to for support, but my circle of trusted adults was shrinking. My peers were focused on what to wear on civvies day (a day where we didn’t have to wear a uniform), while I was focused on just surviving.

I felt so alone in my grief, although my twin, younger brother, dad, and other relatives in my life were also grieving. Friends would try to show up for me, sometimes it didn’t land well. There are friends who had never been to a funeral that walked with me in the depths of my grief who still hold a special place in my heart and life. I felt like I was in a sea of students in the hall between class with a flashing neon sign that read “Human with all the dead people in their life”. At times I could tell how awkward both peers and adults in my life were when approaching me – what do you tell someone when you’ve never experienced a death? And the person who is grieving can’t even legally drive a car!

There was no right or wrong way for me to grieve, but I had to find my own way to grieve. Sometimes they were helpful, and other times the things I did I thought helped me with my grief were not so helpful.

I am fortunate that despite the not-so-careful caring people in my life that made me feel invalidated, I had many caring adults in my life who let me know that grief is natural, and let me share stories of my loved ones. Within the first year of our loss, each of my siblings, my father, and I attended a grief support group. Walking into my first group was both scary and exciting: other teens like me?! The peer volunteer who co-ran these groups was actually someone I knew personally, but had no idea that they had been touched by death too.

I felt deep sadness, guilt, and anger in that group. I also felt deep connection, joy, and even laughter. We got to talk about our sibling, parent, or other close person in our life we were grieving. Talking about grief didn’t make me feel more alone, or worse, it made me feel LESS alone. That we all grieve what we are connected to. That’s it’s okay to not be okay. That sharing our stories of our person and our pain can be healing when we have the right kind of listener in our corner. And that we never have to walk alone at any age or stage of our grief.

a photo of the reflection room, a table with writing supplies and a red cloth hanging on the wall with a tree and peoples' written memories and reflections on grief posted on the sheet around the tree.

The Reflection Room® project: How storytelling supports processing grief

The Saint Elizabeth Foundation offers a project called the Reflection Room – a space for thinking and talking about dying, death, and grief.

The Reflection Room project is an evidence-based participatory art installation that was developed by researchers at the SE Research Centre and Memorial University in 2016. The project included a research component that evaluated the impact of Reflection Rooms as the project adapted over time to address changing needs.

The Reflection Room project was first developed to support people in community and healthcare settings to move from death-denying to death-discussing. From the first installation, the Reflection Room project has gone through three Phases of adaptation and continues to evolve.

Common elements across Reflection Rooms, whether they are set up to include an entire room, hallway, or corner of a room, include a quiet, calming space that invites visitors to read other people’s stories and post their own. The rooms are unstructured and unfacilitated, allowing visitors to engage with the space however they wish.

Over a five-year period from 2016-2020, the Reflection Room project was installed in 62 places across Canada, including in conferences, art galleries, hospices, and hospitals (Phases 1 and 2). Over a thousand stories were shared by individuals during their visits to these various Reflection Rooms. Results from the study from this period showed that storytelling can be an important part of grieving.

In 2020, Phase 3 of its adaptation and evaluation began with the SE Research Centre being asked to expand the reach of the Reflection Room to long-term care home communities in Ontario to respond to some of the accumulated pandemic-related grief in those communities. With the support of the Saint Elizabeth Foundation, Ontario Health Central, Family Councils Ontario, Ontario Centres for Learning, Research and Innovation in Long-Term Care, and Ontario Association of Residents’ Councils, over 50 homes signed up to host a Reflection Room®. In order to adapt to the environment of long-term care homes, an easy-to-set-up ‘kit’ incorporating instructions and materials (e.g., Reflection Cards, a red curtain to display Reflection Cards, candles, etc.) was developed and sent to homes free of cost. Overwhelmingly positive feedback has demonstrated that the Rooms support communities to work through grief by having a quiet space to rest and reflect, disclose emotions, process thoughts, and feel connected to others through sharing stories. The project often is complementary to other existing initiatives in long-term care homes such as palliative care committees and spiritual programs.
A collection of the stories shared over the course of the project is available to view on the Reflection Room website.

If you want to learn more about the project, contact foundation@sehc.com and listen to the Grief Stories podcast episode 64.

Neeliya Paripooranam, MSc, is a Project and Communications Manager at the SE Research Centre, overseeing the Reflection Room® project. Celina Carter, RN PhD, is a Senior Research Associate at the SE Research Centre. Paul Holyoke, PhD, is the Vice President, Research and Innovation at SE Health. Justine Giosa, PhD, is the Scientific Director, SE Research Centre and Adjunct Assistant Professor in the School of Public Health Sciences at the University of Waterloo. Hana Irving, MA, is the Director, Philanthropic Programs for the Saint Elizabeth Foundation.